Cupcakes and Chronic Illness

Hello you lovely bunch of cheeri-o's ;) See what I did there? Yeah, yeah okay! I know I'm not funny. After the past six weeks of hell, I'm finally feeling better. The doctors - at my request - drew my blood and tested for Vit D and Iron. I'm heavily anemic and deficiant in other area's - like brain power... no, not funny still? damn  So, I'm feeling better, getting my happy smile back and getting on with my life. I'd almost completely forgotten that I had gotten that sick, except of course not really because it sort of haunts you, doesn't it? Anyhow, I'd almost forgotten, until an email from Socail Services popped up saying I'd been granted 10 hours of care a week. But I don't need them anymore, I'm not sick     But that my cherub is the trap, the underlying disability is still there and always will be. While everyone is glad I'm feeling better, there are some things as a wheelchair user I'm always  going to struggle with, an...

Hello darlings, As some of you may have noticed, I hadn't posted in a while. I've been having a seriously rough go of it, no idea why until yesterday. I have direly low Iron, Folate and Vitamin D. No wonder I was feeling so rough. But as I was laying in bed, trying to rest and feeling nothing but restless, it felt like this was never ending. My new normal, and I started to get depressed. Let me tell you something, nothing was brining me joy at this point. But I involved myself in activity after activity trying to find something to bring me out of it. It was possibly the best thing I could have done, because at my lowest I - ~ Agreed to be the east herts representative for EDSUK. Holding general meetings to support fellow bendy people. ~ Agreed to give an informal talk about complex medical conditions and Assistance dogs at our local hospital. ~ Moved my birthday party from Cambridge to my home town, not my grandparents can make it. ~ Agreed to organise Canine Generated Independ...

Hey guys, Phew I can't believe it has been a month since I posted about Italy, man I'm so sorry I've not been around. I've been really poorly and we aren't quiet sure why'. When I got back from Italy I expected some "pay back" for borrowing future spoons. But I didn't expect this. I'm managing to get out of the house maybe once in a week, and only for a few hours before I have to crawl back into bed. I feel exhausted and shaky like I'm moving through a vat of porridge, not fun!  In addition to this, I've been having some breathing issues. Laying sitting standing it didn't seem to matter, I had a wheeze. I tried to work out what was causing it and eventually I settled on the vape juice I was using, so I changed it and it's getting a little better. Problem is I don't know what ingredients set it off, so I can't avoid it. It seems to be the whole brand though not just one of their juices. I got an appointment for my ankles ...