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Flare ups

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Hello darlings, As some of you may have noticed, I hadn't posted in a while. I've been having a seriously rough go of it, no idea why until yesterday. I have direly low Iron, Folate and Vitamin D. No wonder I was feeling so rough. But as I was laying in bed, trying to rest and feeling nothing but restless, it felt like this was never ending. My new normal, and I started to get depressed. Let me tell you something, nothing was brining me joy at this point. But I involved myself in activity after activity trying to find something to bring me out of it. It was possibly the best thing I could have done, because at my lowest I - ~ Agreed to be the east herts representative for EDSUK. Holding general meetings to support fellow bendy people. ~ Agreed to give an informal talk about complex medical conditions and Assistance dogs at our local hospital. ~ Moved my birthday party from Cambridge to my home town, not my grandparents can make it. ~ Agreed to organise Canine Generated Independ...
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C is for CARING

Hello you lovely bunch of cheeri-o's ;) See what I did there? Yeah, yeah okay! I know I'm not funny. After the past six weeks of hell, I'm finally feeling better. The doctors - at my request - drew my blood and tested for Vit D and Iron. I'm heavily anemic and deficiant in other area's - like brain power... no, not funny still? damn  So, I'm feeling better, getting my happy smile back and getting on with my life. I'd almost completely forgotten that I had gotten that sick, except of course not really because it sort of haunts you, doesn't it? Anyhow, I'd almost forgotten, until an email from Socail Services popped up saying I'd been granted 10 hours of care a week. But I don't need them anymore, I'm not sick     But that my cherub is the trap, the underlying disability is still there and always will be. While everyone is glad I'm feeling better, there are some things as a wheelchair user I'm always  going to struggle with, an...
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Gift Giving

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Is it not true that sometimes the greatest gifts in life are free, or only payment required is your love and a little time? Or, well, in this specific case a lot of time. My boyfriend bought me a number of amazing gifts over the weekend, a VOG mask to help prevent airbourne allergens reaching me, a set of new AMAZING unicorn brushes which I obviously love, and a 38 case of my favourite drink. But you know the best thing he did for me this weekend? Well, two things actually. The first, relatively free, the second just precious energy spent. He helped me take my dog out for the day . Poor Jaxx works so hard for me, and the closest thing to a day out he usually gets is to the Cricket field within wheeling/walking distance. While this is great, I do feel awful that he doesn't get to experience more of the world (Although that is changing next week). So my boyfreind drove us to the local forest. We parked up in the disabled bay to drop me off with the wheelchair (I'm still waiti...
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