Cupcakes and Chronic Illness

Hello you lovely bunch of cheeri-o's ;) See what I did there? Yeah, yeah okay! I know I'm not funny. After the past six weeks of hell, I'm finally feeling better. The doctors - at my request - drew my blood and tested for Vit D and Iron. I'm heavily anemic and deficiant in other area's - like brain power... no, not funny still? damn  So, I'm feeling better, getting my happy smile back and getting on with my life. I'd almost completely forgotten that I had gotten that sick, except of course not really because it sort of haunts you, doesn't it? Anyhow, I'd almost forgotten, until an email from Socail Services popped up saying I'd been granted 10 hours of care a week. But I don't need them anymore, I'm not sick     But that my cherub is the trap, the underlying disability is still there and always will be. While everyone is glad I'm feeling better, there are some things as a wheelchair user I'm always  going to struggle with, an...

Hello darlings, As some of you may have noticed, I hadn't posted in a while. I've been having a seriously rough go of it, no idea why until yesterday. I have direly low Iron, Folate and Vitamin D. No wonder I was feeling so rough. But as I was laying in bed, trying to rest and feeling nothing but restless, it felt like this was never ending. My new normal, and I started to get depressed. Let me tell you something, nothing was brining me joy at this point. But I involved myself in activity after activity trying to find something to bring me out of it. It was possibly the best thing I could have done, because at my lowest I - ~ Agreed to be the east herts representative for EDSUK. Holding general meetings to support fellow bendy people. ~ Agreed to give an informal talk about complex medical conditions and Assistance dogs at our local hospital. ~ Moved my birthday party from Cambridge to my home town, not my grandparents can make it. ~ Agreed to organise Canine Generated Independ...

Hey guys, Phew I can't believe it has been a month since I posted about Italy, man I'm so sorry I've not been around. I've been really poorly and we aren't quiet sure why'. When I got back from Italy I expected some "pay back" for borrowing future spoons. But I didn't expect this. I'm managing to get out of the house maybe once in a week, and only for a few hours before I have to crawl back into bed. I feel exhausted and shaky like I'm moving through a vat of porridge, not fun!  In addition to this, I've been having some breathing issues. Laying sitting standing it didn't seem to matter, I had a wheeze. I tried to work out what was causing it and eventually I settled on the vape juice I was using, so I changed it and it's getting a little better. Problem is I don't know what ingredients set it off, so I can't avoid it. It seems to be the whole brand though not just one of their juices. I got an appointment for my ankles ...

Traveling can be difficult as someone with a chronic illness, and travelling with a big black dog is no different. While I am not referring to the popular metaphor depicting a big black dog as depressions weight on your chest, my own big black dog did sleep on my body weight. His feet by mine and his head on my chest.  He is of course the best friend I could ever ask for. Man did he impress me while we were travelling. For those of you who don't know, we went from Stansted UK to Pordenone Italy. This trip was split over two days, two coaches, three trains. The first leg of the trip was early in the morning but Jaxx was wide awake and ready to work.  From Stansted UK to London Victoria, where we changed coach, was uneventful. On the coach to Paris I had the start of an allergic reaction, to I suspect the cleaning solution the coach stank of. I took my emergency meds and put my mask on.  When we got off of the coach on the ferry, I used my wheelchair and the driver was ver...

Is it not true that sometimes the greatest gifts in life are free, or only payment required is your love and a little time? Or, well, in this specific case a lot of time. My boyfriend bought me a number of amazing gifts over the weekend, a VOG mask to help prevent airbourne allergens reaching me, a set of new AMAZING unicorn brushes which I obviously love, and a 38 case of my favourite drink. But you know the best thing he did for me this weekend? Well, two things actually. The first, relatively free, the second just precious energy spent. He helped me take my dog out for the day . Poor Jaxx works so hard for me, and the closest thing to a day out he usually gets is to the Cricket field within wheeling/walking distance. While this is great, I do feel awful that he doesn't get to experience more of the world (Although that is changing next week). So my boyfreind drove us to the local forest. We parked up in the disabled bay to drop me off with the wheelchair (I'm still waiti...

Hey guys! Hope you're all doing fantastically, I thought I'd do a ''Whats in my bag'' style post, with a chronically ill style spin! I'm just a really nosy kinda gal, so I enjoy reading these posts! If you've done one, drop me a link and I'll come check it out! Without further a-do, here's the juicy content :D This is my WW bag, I love it because it goes over my body when I'm in my wheelchair, the straps are thick and it has lots of places to hide things away ;) So when you have an Assistance Dog, you need to take treats everywhere you go. I love this treat pouch because it draw-strings closed and clips onto my bag keeping the treats fresh.  This is my Epi kit it's a cute pencil case from WHSmiths and my prescribed rescue medication and epinephrine pen. I also keep a note pad inside to mark down my symptoms and where I was etc. Next is my wallet and keys. My wallet was given to my by a friend of mine, so I don't know where it came fr...